Amy S.F. Lutz is a historian of medicine at the University of Pennsylvania in Philadelphia, vice president of the National Council on Severe Autism and the parent of a profoundly autistic son, Jonah, 24. She has written about profound autism for many platforms, including The Atlantic, Psychology Today, Spectrum and Slate. Her most recent book is “Chasing the Intact Mind: How the Severely Autistic and Intellectually Disabled Were Excluded From the Debates That Affect Them Most” (2023). She is also the author of “We Walk: Life With Severe Autism” (2020) and “Each Day I Like It Better: Autism, ECT, and the Treatment of Our Most Impaired Children” (2014). She lives outside of Philadelphia with her husband and whichever of her five children happen to be home at the time.
Amy S.F. Lutz
Writer
From this contributor
Building bridges: Collaboration across the autism community
An autistic person and the mother of an autistic child explore partnership in the autism community.
Building bridges: Collaboration across the autism community
Adults with disabilities deserve right to choose where to live
The idea that one residential model is appropriate for the entire spectrum of intellectual and developmental disability is patently absurd.
Adults with disabilities deserve right to choose where to live
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Coding error caused layoffs at National Institute of Neurological Disorders and Stroke this week, source says
Thirty employees—including 11 lab heads—at the institute should “immediately return to work,” according to an email the institute’s Office of Human Resources sent to top administration at the institute Wednesday evening.
Coding error caused layoffs at National Institute of Neurological Disorders and Stroke this week, source says
Thirty employees—including 11 lab heads—at the institute should “immediately return to work,” according to an email the institute’s Office of Human Resources sent to top administration at the institute Wednesday evening.
PTEN problems underscore autism connection to excess brain fluid
Damaging variants in the autism-linked gene cause congenital hydrocephalus—a buildup of cerebrospinal fluid in the brain—by turbocharging a downstream signaling pathway that promotes the growth of cells, according to a new study.
PTEN problems underscore autism connection to excess brain fluid
Damaging variants in the autism-linked gene cause congenital hydrocephalus—a buildup of cerebrospinal fluid in the brain—by turbocharging a downstream signaling pathway that promotes the growth of cells, according to a new study.
U.S. health agency purge includes 10 lab heads at National Institute of Neurological Disorders and Stroke
The reasons for selecting these researchers—who have led work on neuronal migration, dopamine receptors in neuronal signaling and the structure of ion channels, among other areas—remain unclear.
U.S. health agency purge includes 10 lab heads at National Institute of Neurological Disorders and Stroke
The reasons for selecting these researchers—who have led work on neuronal migration, dopamine receptors in neuronal signaling and the structure of ion channels, among other areas—remain unclear.